Marsha Treadwell, PhD

Professor in Residence
Pediatrics

I am a Professor In Residence in the Department of Pediatrics, Division of Hematology in the UCSF School of Medicine. I serve as the Co-Chair for the Diversity, Equity, Inclusion and Anti-Racism Council for the UCSF Benioff Children’s Hospitals. I am the Co-Director of the UCSF Sickle Cell Center of Excellence and I am PI for the Sickle Cell Disease Implementation Consortium in Northern California. I also serve as Regional Director for the Pacific Sickle Cell Regional Collaborative. I am a licensed clinical psychologist and my research and clinical work has focused on improving quality of life, quality of care, patient reported outcomes and transition from pediatric to adult care for individuals living with sickle cell disease and their families. I lead an internationally recognized program of research focused on how social drivers, psychological and behavioral factors, and organizational structures and processes impact the health and well-being of populations affected by sickle cell disease.

Publications: 

Burden of employment loss and absenteeism in adults and caregivers of children with sickle cell disease.

Blood advances

Gordon RD, Welkie RL, Quaye N, Hankins JS, Kassim AA, Thompson AA, Treadwell M, Lin CJ, Cronin RM

Mortality in adults with sickle cell disease: Results from the sickle cell disease implementation consortium (SCDIC) registry.

American journal of hematology

Njoku F, Pugh N, Brambilla D, Kroner B, Shah N, Treadwell M, Gibson R, Hsu LL, Gordeuk VR, Glassberg J, Hankins JS, Kutlar A, King AA, Kanter J

Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry.

BMC health services research

Mendez GG, Nocek JM, Brambilla DJ, Jacobs S, Cole O, Kanter J, Glassberg J, Saving KL, Melvin CL, Gibson RW, Treadwell M, Jackson GL, King AA, Gordeuk VR, Kroner B, Hsu LL, Sickle Cell Disease Implementation Consortium

Perceptions and preferences for genetic testing for sickle cell disease or trait: a qualitative study in Cameroon, Ghana and Tanzania.

European journal of human genetics : EJHG

Munung NS, Kamga KK, Treadwell MJ, Dennis-Antwi J, Anie KA, Bukini D, Makani J, Wonkam A

The effect of an adapted digital mental health intervention for sickle cell disease on engagement: a pilot randomized controlled trial.

BMC Digital Health

Emily V. Nardo, Ektha Parchuri, Julia A. O’Brien, Lori Crosby, Jerlym Porter, Tonya Palermo, Cara Nikolajski, Marsha Treadwell, Cheryl A. Hillery, Eva Szigethy, Charles R. Jonassaint

Grndad and Disease Modifying Therapy (DMT): Shifts in Dmt Are Seen at the Adolescent/Young Adult Transition in Sickle Cell Disease in a Multi-Site Prospective Registry.

Blood

Sophie Lanzkron, Deepa Manwani, Julie Kanter, Arpan A Sinha, Robin E. Miller, Robert Cronin, Seethal A Jacob, James Harper, Alan Randall Anderson, Marsha Treadwell, Amma T. Owusu-Ansah, Beng R. Fuh, Molly Mandernach, Jahnavi Gollamudi, Suzanne L Saccente, Stephanie A. Fritch Lilla, Melissa McNaull, Dana Marie LeBlanc, Kay Linn Saving, Stephanie H. Guarino, Marisol Betensky, Alice J. Cohen, Ashok B. Raj, Farzana A Sayani, Sanjay J. Shah, Shalu Narang, Bindu Kanathezhath Sathi, John J Strouse, Trisha E. Wong, Ofelia A. Alvarez, Srila Gopal, Jessica Liang, Daniel Semakula, Matthew Chang, Kenneth Rivlin, Sana Saif Ur Rehman, Lisa M Shook, Melissa Frei-Jones, Jane A. Little

Impact of an Individualized Pain Plan (IPP) for Adults with Sickle Cell Disease Experiencing a Vaso-Occlusive Episode (VOE) on Patient Satisfaction and ED Provider Confidence in Treating Pain.

Blood

Rita V Masese, Lauren Siewny, Siera Gollan, Jeffrey A. Glassberg, Victor R. Gordeuk, Jane S Hankins, Cathy Melvin, Liliana Preiss, Paula Jean Tanabe, Marsha Treadwell, Allison A. King

Optimizing Acute Sickle Cell Care at Community Health Partners Medical Center.

Blood

Jeffrey T Means, Nicole Palmer, Jeffrey Uller, Daniel Park, Andrew Hwang, Brian Chinnock, Marsha Treadwell, Patrick Macmillan, Haifaa Abdulhaq, Wesley Viau, Nivedana Ravi, Sani Bukari

Role of Menstrual Bleeding Assessments in Sickle Cell Clinics in Improving Quality of Care for Women- a Multicenter Approach.

Blood

Neha Bhasin, Gillian Rush, John J Strouse, Kim Moffatt-Bazile, Rania E Mohamed, Seethal A Jacob, Bindu Kanathezhath Sathi, Gayle M Smink, Corinna L. Schultz, Nicole DiVirgilio, Elliott P. Vichinsky, Maria C Velez, Robert Hagar, Maa-Ohui Quarmyne, Ugochi Ogu, Marsha Treadwell

Looking ahead: ethical and social challenges of somatic gene therapy for sickle cell disease in Africa.

Gene therapy

Munung NS, Nnodu OE, Moru PO, Kalu AA, Impouma B, Treadwell MJ, Wonkam A

"The project did not come to us with a solution": Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle

BMC health services research

Baumann AA, Hankins JS, Hsu LL, Gibson RW, Richardson LD, Treadwell M, Glassberg JA, Bourne S, Luo L, Masese RV, Demartino T, Nocek J, Taaffe E, Gollan S, Ruiz OO, Nwosu C, Qashou N, James AS, Tanabe P, King AA

Caught between pity, explicit bias, and discrimination: a qualitative study on the impact of stigma on the quality of life of persons living with sickle cell disease in three African countries.

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Munung NS, Treadwell M, Kamga KK, Dennis-Antwi J, Anie K, Bukini D, Makani J, Wonkam A

Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease.

HemaSphere

Howell KE, Pugh N, Longoria J, Shah N, Kutlar A, Gordeuk VR, King AA, Glassberg J, Kayle M, Melvin C, Treadwell M, Hankins JS, Porter JS

The Effect of an Adapted Digital Mental Health Intervention for Sickle Cell Disease on Engagement: A Pilot Randomized Controlled Trial.

Research square

Parchuri E, Nardo E, O'Brien J, Crosby L, Porter J, Palermo T, Nikolajski CE, Treadwell M, Hillery C, Szigethy E, Jonassaint C

Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease.

JAMA network open

Harris KM, Preiss L, Varughese T, Bauer A, Calhoun CL, Treadwell M, Masese R, Hankins JS, Hussain FA, Glassberg J, Melvin CL, Gibson R, King AA, Sickle Cell Disease Implementation Consortium

CureSCi Metadata Catalog-Making sickle cell studies findable.

PloS one

Pan H, Ives C, Mandal M, Qin Y, Hendershot T, Popovic J, Brambilla D, Stratford J, Treadwell M, Wu X, Kroner B

Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry.

BMC medical ethics

Munung NS, Nembaware V, Osei-Tutu L, Treadwell M, Chide OE, Bukini D, Tutuba H, SickleInAfrica ELSI WG, Wonkam A

Quality of Life in Sickle Cell Disease: What Matters.

Hematology/oncology clinics of North America

Treadwell MJ, Anie KA

A New Phen X Collection: Sickle Cell Disease Psychosocial and Social Determinants of Health Protocols.

Blood

Lori E. Crosby, Allison A. King, Jerlym S. Porter, Sherif M. Badawy, Dominique Bulgin, Steven J. Hardy, Staci D. Arnold, Desiree Williford, Marsha Treadwell, Wayne Huggins, Cataia Ives, Marian Sullivan, Carol Hamilton

Baseline Patient and Provider Reports of Quality of Care and Confidence Providing ED Management of Vaso-Occlusive Episodes.

Blood

Paula Tanabe, Jane Hankins, Robert Gibson, Victor R. Gordeuk, Cathy L Melvin, Liliana Preiss, Lauren Siewny, Lynne Richardson, Marsha Treadwell, Allison A. King

Mortality in Adults with Sickle Cell Disease: Results from the Sickle Cell Disease Implementation Consortium (SCDIC) Registry.

Blood

Franklin Njoku, Norma Pugh, Marsha Treadwell, Jeffrey A. Glassberg, Abdullah Kutlar, Robert Gibson, Nirmish Shah, Victor R. Gordeuk, Lewis L. Hsu, Jane Hankins, Allison A. King, Julie Kanter

Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia.

Blood

Aimee K. Hildenbrand, Allison A. King, Constance A Mara, Yolanda Johnson, Lisa M Shook, Catharine Whitacre, Maria T Britto, Charles T. Quinn, William Brinkman, Rogelle Hackworth, Jean L. Raphael, Venee N. Tubman, Alexis A. Thompson, Kim Smith-Whitley, Sherif M. Badawy, Susan E. Creary, Neha Bhasin, Marsha Treadwell, Steven K Reader, Angeli Rampersad, Amy Sobota, Lori E. Crosby

What does it mean to be affiliated with care?: Delphi consensus on the definition of "unaffiliation" and "specialist" in sickle cell disease.

PloS one

Lamont AE, Hsu LL, Jacobs S, Gibson R, Treadwell M, Chen Y, Lottenberg R, Axelrod K, Varughese T, Melvin C, Smith S, Chukwudozie IB, Kanter J, Sickle Cell Disease Implementation Consortium

Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative.

Frontiers in genetics

Treadwell MJ, Du L, Bhasin N, Marsh AM, Wun T, Bender MA, Wong TE, Crook N, Chung JH, Norman S, Camilo N, Cavazos J, Nugent D

An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Treadwell MJ, Mushiana S, Badawy SM, Preiss L, King AA, Kroner B, Chen Y, Glassberg J, Gordeuk V, Shah N, Snyder A, Wun T, Sickle Cell Disease Implementation Consortium (SCDIC)

Perspectives of individuals with sickle cell disease on barriers to care.

PloS one

Phillips S, Chen Y, Masese R, Noisette L, Jordan K, Jacobs S, Hsu LL, Melvin CL, Treadwell M, Shah N, Tanabe P, Kanter J

Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.

American journal of hematology

Kroner BL, Hankins JS, Pugh N, Kutlar A, King AA, Shah NR, Kanter J, Glassberg J, Treadwell M, Gordeuk VR, Sickle Cell Disease Implementation Consortium

Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA.

BMJ open

Smeltzer MP, Howell KE, Treadwell M, Preiss L, King AA, Glassberg JA, Tanabe P, Badawy SM, DiMartino L, Gibson R, Kanter J, Klesges LM, Hankins JS, Sickle Cell Disease Implementation Consortium

Early Evaluation of the Use of Crizanlizumab in Sickle Cell Disease: A National Alliance of Sickle Cell Centers Study.

Blood

Julie Kanter, Gerhard Hellemann, Alice J. Cohen, Deepa Manwani, Modupe Idowu, Stephanie Guarino, Sana Saif Ur Rehman, Marsha Treadwell, E. Leila Jerome Clay, Amma Owusu-Ansah, Jane A. Little, Payal Desai, Mohan Madisetti, Sophie M. Lanzkron

Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium.

PloS one

Masese RV, Bulgin D, Knisely MR, Preiss L, Stevenson E, Hankins JS, Treadwell MJ, King AA, Gordeuk VR, Kanter J, Gibson R, Glassberg JA, Tanabe P, Shah N, Sickle Cell Disease Implementation Consortium

Patient-reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease.

American journal of hematology

Longoria JN, Pugh NL, Gordeuk V, Hsu LL, Treadwell M, King AA, Gibson R, Kayle M, Crego N, Glassberg J, Melvin CL, Hankins JS, Porter J

Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.

JMIR research protocols

Hood AM, Strong H, Nwankwo C, Johnson Y, Peugh J, Mara CA, Shook LM, Brinkman WB, Real FJ, Klein MD, Hackworth R, Badawy SM, Thompson AA, Raphael JL, Yates AM, Smith-Whitley K, King AA, Calhoun C, Creary SE, Piccone CM, Hildenbrand AK, Reader SK, Neumayr L, Meier ER, Sobota AE, Rana S, Britto M, Saving KL, Treadwell M, Quinn CT, Ware RE, Crosby LE

Improving Preventive Care for Children With Sickle Cell Anemia: A Quality Improvement Initiative.

Pediatric quality & safety

Cabana MD, Marsh A, Treadwell MJ, Stemmler P, Rowland M, Bender MA, Bhasin N, Chung JH, Hassell K, Abdul Rashid NFN, Wong TE, Bardach NS

Association between hospital admissions and healthcare provider communication for individuals with sickle cell disease.

Hematology (Amsterdam, Netherlands)

Cronin RM, Yang M, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson AA, Kalinyak K, DeBaun M, Treadwell M

Hydroxyurea Use and Outcomes of Pregnancy in Sickle Cell Disease.

Blood

Victor R. Gordeuk, Barbara Kroner, Norma Pugh, Jane S. Hankins, Abdullah Kutlar, Allison A. King, Nirmish Shah, Julie Kanter, Jeffrey Glassberg, Marsha Treadwell

Predictors of Maternal Morbidity Among Participants Enrolled in the Sickle Cell Disease Implementation Consortium Registry.

Blood

Rita V Masese, Dominique Bulgin, Liliana Preiss, Mitchell Knisely, Eleanor Stevenson, Jane S. Hankins, Marsha Treadwell, Allison A. King, Victor R. Gordeuk, Julie Kanter, Robert Gibson, Jeffrey A. Glassberg, Paula Tanabe, Nirmish Shah

Sex Based Differences in Sickle Cell Disease.

Blood

Rita V Masese, Dominique Bulgin, Mitchell Knisely, Liliana Preiss, Eleanor Stevenson, Jane S. Hankins, Marsha Treadwell, Allison A. King, Victor R. Gordeuk, Julie Kanter, Robert Gibson, Jeffrey A. Glassberg, Paula Tanabe, Nirmish Shah

Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study.

Blood advances

Hodges JR, Phillips SM, Norell S, Nwosu C, Khan H, Luo L, Badawy SM, King A, Tanabe P, Treadwell M, Rojas Smith L, Calhoun C, Hankins JS, Porter J

Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects.

Blood advances

Kanter J, Smith WR, Desai PC, Treadwell M, Andemariam B, Little J, Nugent D, Claster S, Manwani DG, Baker J, Strouse JJ, Osunkwo I, Stewart RW, King A, Shook LM, Roberts JD, Lanzkron S

Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study.

JMIR research protocols

Hankins JS, Shah N, DiMartino L, Brambilla D, Fernandez ME, Gibson RW, Gordeuk VR, Lottenberg R, Kutlar A, Melvin C, Simon J, Wun T, Treadwell M, Calhoun C, Baumann A, Potter MB, Klesges L, Bosworth H

A National Measurement Framework to Assess and Improve Sickle Cell Care in 4 US Regions.

Public health reports (Washington, D.C. : 1974)

Faro EZ, Shook L, Treadwell MJ, King AA, Whiteman LN, Ivy ED, Hulihan M, Kavanagh PL, Selk S, Oyeku S, Berns SD

Patient-reported Outcomes in Sickle Cell Disease and Association with Clinical and Psychosocial Factors: Report from the Sickle Cell Disease Implementation Consortium.

American journal of hematology

Knisely MR, Pugh N, Kroner B, Masese R, Gordeuk V, King AA, Smith SM, Gurney JG, Adams R, Wun T, Snyder A, Glassberg J, Shah N, Treadwell M

Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care.

JAMA network open

Kanter J, Gibson R, Lawrence RH, Smeltzer MP, Pugh NL, Glassberg J, Masese RV, King AA, Calhoun C, Hankins JS, Treadwell M

Paediatric to adult transition care for patients with sickle cell disease: a global perspective.

The Lancet. Haematology

Inusa BPD, Stewart CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M

Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease.

Pediatric blood & cancer

Kayle M, Valle J, Paulukonis S, Holl JL, Tanabe P, French DD, Garg R, Liem RI, Badawy SM, Treadwell MJ

Understanding sickle cell disease: impact of surveillance and gaps in knowledge.

Blood advances

Kaur M, Brown M, Love TW, Thompson A, Treadwell M, Smith-Whitley K

Chapter 8 Pediatric sickle cell disease.

Katherine M. Kidwell, Marsha J. Treadwell, Lori E. Crosby

Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease.

Journal of transcultural nursing : official journal of the Transcultural Nursing Society

Clayton-Jones D, Matthie N, Treadwell M, Field JJ, Mager A, Sawdy R, George Dalmida S, Leonard C, Koch KL, Haglund K

Risk factors for hospitalizations and readmissions among individuals with sickle cell disease: results of a U.S. survey study.

Hematology (Amsterdam, Netherlands)

Cronin RM, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson A, Kalinyak K, DeBaun M, Treadwell M

A Pilot Adult Sickle Cell Hematology Clinic in California's Inland Empire Improves Patient Outcome.

Blood

Neha Chiruvolu, Amie Patel, Carolyn Rowley, Marsha J. Treadwell, Elliott P. Vichinsky, Zahra Pakbaz

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations.

Frontiers in genetics

Munung NS, Nembaware V, de Vries J, Bukini D, Tluway F, Treadwell M, Sangeda RZ, Mazandu G, Jonas M, Paintsil V, Nnodu OE, Balandya E, Makani J, Wonkam A

Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana.

AJOB empirical bioethics

Bukini D, deVries J, Treadwell M, Anie K, Dennis-Antwi J, Kamga KK, McCurdy S, Ohene-Frempong K, Makani J, Wonkam A

A STRATEGY FOR THE MEASUREMENT OF SICKLE CELL DISEASE SYMPTOMS FROM THE PATIENT PERSPECTIVE.

HemaSphere

F. Ojo, L. Litcher-Kelly, I. Mazar, B. Klooster, A. Roeder, E. Chaston, S. Ollis, M. Treadwell, D. Reasner

Barriers to Pediatric Sickle Cell Disease Guideline Recommendations.

Global pediatric health

Cabana MD, Kanter J, Marsh AM, Treadwell MJ, Rowland M, Stemmler P, Bardach NS

Lessons Learned from Building a Pediatric-to-Adult Sickle Cell Transition Program.

Southern medical journal

Smith WR, Sisler IY, Johnson S, Lipato TJ, Newlin JS, Owens ZS, Morgan AM, Treadwell MJ, Polak K

Development of a Hydroxyurea Decision Aid for Parents of Children With Sickle Cell Anemia.

Journal of pediatric hematology/oncology

Crosby LE, Walton A, Shook LM, Ware RE, Treadwell M, Saving KL, Britto M, Peugh J, McTate E, Oyeku S, Nwankwo C, Brinkman WB

Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials.

Blood

Funke Ojo, Leighann Litcher-Kelly, Iyar Mazar, Brittany Klooster, Sarah Ollis, Emily Chaston, Adam Roeder, Marsha J. Treadwell, David Reasner

Pediatric residents' perceived barriers to opioid use in sickle cell disease pain management.

Pediatric blood & cancer

Fearon A, Marsh A, Kim J, Treadwell M

Virtual reality as complementary pain therapy in hospitalized patients with sickle cell disease.

Pediatric blood & cancer

Agrawal AK, Robertson S, Litwin L, Tringale E, Treadwell M, Hoppe C, Marsh A

The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.

American journal of hematology

DiMartino LD, Baumann AA, Hsu LL, Kanter J, Gordeuk VR, Glassberg J, Treadwell MJ, Melvin CL, Telfair J, Klesges LM, King A, Wun T, Shah N, Gibson RW, Hankins JS

Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana.

Journal of genetic counseling

Dennis-Antwi JA, Ohene-Frempong K, Anie KA, Dzikunu H, Agyare VA, Boadu RO, Antwi JS, Asafo MK, Anim-Boamah O, Asubonteng AK, Agyei S, Wonkam A, Treadwell MJ

Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease.

Hematology (Amsterdam, Netherlands)

Cronin RM, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson AA, Kalinyak K, DeBaun MR, Treadwell M

Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study.

OMICS A Journal of Integrative Biology

Marsha J. Treadwell, Julie Makani, Kwaku Ohene-Frempong, Solomon Ofori-Acquah, Sheryl McCurdy, Jantina de Vries, Daima Bukini, Jemima Dennis-Antwi, Karen Kengne Kamga, Columba Mbekenga, Edmond Tingang Wonkam, Godfrey Tangwa, Charmaine D. Royal, Ambroise Wonkam, as members of the H3Africa Consorti

Impact of Elosulfase Alfa on Pain in Patients with Morquio A Syndrome over 52 Weeks.

Journal of Inborn Errors of Metabolism and Screening

Marsha Treadwell, Paul R. Harmatz, Barbara K. Burton, John J. Mitchell, Nicole Muschol, Simon A. Jones, Gregory M. Pastores, Heather A. Lau, Rebecca Sparkes, V. Reid Sutton, Bianca Meesen, Christine A. Haller, Adam J. Shaywitz, Jeffrey I. Gold

Long-Term Pulmonary Function and Quality of Life in Children After Acute Respiratory Distress Syndrome: A Feasibility Investigation.

Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies

Ward SL, Turpin A, Spicer AC, Treadwell MJ, Church GD, Flori HR

Emergency department utilization by Californians with sickle cell disease, 2005-2014.

Pediatric blood & cancer

Paulukonis ST, Feuchtbaum LB, Coates TD, Neumayr LD, Treadwell MJ, Vichinsky EP, Hulihan MM

Mortality Among Women with Sickle Cell Disease Admitted for Delivery, California 2004-2014.

Blood

Faith S. Raider, Susan Paulukonis, Ward Hagar, Marsha J Treadwell, Mary Hulihan

Self-efficacy and readiness for transition from pediatric to adult care in sickle cell disease.

International journal of adolescent medicine and health

Treadwell M, Johnson S, Sisler I, Bitsko M, Gildengorin G, Medina R, Barreda F, Major K, Telfair J, Smith WR

Impact of elosulfase alfa in patients with morquio A syndrome who have limited ambulation: An open-label, phase 2 study.

American journal of medical genetics. Part A

Harmatz PR, Mengel E, Geberhiwot T, Muschol N, Hendriksz CJ, Burton BK, Jameson E, Berger KI, Jester A, Treadwell M, Sisic Z, Decker C

278 Emergency Department Utilization by Californians With Sickle Cell Disease, 2005-2014.

Annals of Emergency Medicine

S. Paulukonis, E. Vichinsky, L. Neumayr, M. Treadwell, T. Coates, L. Feuchtbaum, M. Hulihan

Barriers and facilitators to research participation among adults, and parents of children with sickle cell disease: A trans-regional survey.

American journal of hematology

Cronin RM, Hankins JS, Adams-Graves P, Thompson AA, Kalinyak K, Byrd J, McClain B, Kassim A, DeBaun M, Treadwell M

Development of a sickle cell disease readiness for transition assessment.

International journal of adolescent medicine and health

Treadwell M, Johnson S, Sisler I, Bitsko M, Gildengorin G, Medina R, Barreda F, Major K, Telfair J, Smith WR

Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana.

Journal of community genetics

Anie KA, Treadwell MJ, Grant AM, Dennis-Antwi JA, Asafo MK, Lamptey ME, Ojodu J, Yusuf C, Otaigbe A, Ohene-Frempong K

Proceedings of a Sickle Cell Disease Ontology workshop - Towards the first comprehensive ontology for Sickle Cell Disease.

Applied & translational genomics

Mulder N, Nembaware V, Adekile A, Anie KA, Inusa B, Brown B, Campbell A, Chinenere F, Chunda-Liyoka C, Derebail VK, Geard A, Ghedira K, Hamilton CM, Hanchard NA, Haendel M, Huggins W, Ibrahim M, Jupp S, Kamga KK, Knight-Madden J, Lopez-Sall P, Mbiyavanga M, Munube D, Nirenberg D, Nnodu O, Ofori-Acquah SF, Ohene-Frempong K, Opap KB, Panji S, Park M, Pule G, Royal C, Sangeda R, Tayo B, Treadwell M, Tshilolo L, Wonkam A

Impact of elosulfase alfa in patients with Morquio syndrome type A who have limited ambulation: An open-label, phase 2 study.

Molecular Genetics and Metabolism

Paul R. Harmatz, Andrea Jester, Eugen Mengel, Marsha Treadwell, Barbara K. Burton, Kenneth I. Berger, Christian J. Hendriksz, Tarekegn Geberhiwot, Zlatko Sisic, Celeste Decker

Teaching About Genetics and Sickle Cell Disease In Fifth Grade.

Journal of the National Medical Association

Day LL, Murray E, Treadwell MJ, Lubin BH

Safety and physiological effects of two different doses of elosulfase alfa in patients with morquio a syndrome: A randomized, double-blind, pilot study.

American journal of medical genetics. Part A

Burton BK, Berger KI, Lewis GD, Tarnopolsky M, Treadwell M, Mitchell JJ, Muschol N, Jones SA, Sutton VR, Pastores GM, Lau H, Sparkes R, Genter F, Shaywitz AJ, Harmatz P

Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients.

Cardiovascular journal of Africa

Wonkam A, Makani J, Ofori-Aquah S, Nnodu OE, Treadwell M, Royal C, Ohene-Frempong K

Impact of elosulfase alfa on pain in patients with Morquio syndrome type A.

Molecular Genetics and Metabolism

Paul Harmatz, M. Treadwell, Barbara K. Burton, John Mitchell, N. Muschol, Simon Jones, Gregory Pastores, Heather Lau, R. Sparkes, V.R. Sutton, F. Genter, C. Haller, A. Shaywitz

Using formative research to develop a counselor training program for newborn screening in Ghana.

Journal of genetic counseling

Treadwell MJ, Anie KA, Grant AM, Ofori-Acquah SF, Ohene-Frempong K

Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks.

Health and quality of life outcomes

Keller SD, Yang M, Treadwell MJ, Werner EM, Hassell KL

Research capacity. Enabling the genomic revolution in Africa.

Science (New York, N.Y.)

Rotimi C, Abayomi A, Abimiku A, Adabayeri VM, Adebamowo C, Adebiyi E, Ademola AD, Adeyemo A, Adu D, Affolabi D, Agongo G, Ajayi S, Akarolo-Anthony S, Akinyemi R, Akpalu A, Alberts M, Alonso Betancourt O, Alzohairy AM, Ameni G, Amodu O, Anabwani G, Andersen K, Arogundade F, Arulogun O, Asogun D, Bakare R, Balde N, Baniecki ML, Beiswanger C, Benkahla A, Bethke L, Boehnke M, Boima V, Brandful J, Brooks AI, Brosius FC, Brown C, Bucheton B, Burke DT, Burnett BG, Carrington-Lawrence S, Carstens N, Chisi J, Christoffels A, Cooper R, Cordell H, Crowther N, Croxton T, de Vries J, Derr L, Donkor P, Doumbia S, Duncanson A, Ekem I, El Sayed A, Engel ME, Enyaru JC, Everett D, Fadlelmola FM, Fakunle E, Fischbeck KH, Fischer A, Folarin O, Gamieldien J, Garry RF, Gaseitsiwe S, Gbadegesin R, Ghansah A, Giovanni M, Goesbeck P, Gomez-Olive FX, Grant DS, Grewal R, Guyer M, Hanchard NA, Happi CT, Hazelhurst S, Hennig BJ, Hertz- C, Hide W, Hilderbrandt F, Hugo-Hamman C, Ibrahim ME, James R, Jaufeerally-Fakim Y, Jenkins C, Jentsch U, Jiang PP, Joloba M, Jongeneel V, Joubert F, Kader M, Kahn K, Kaleebu P, Kapiga SH, Kassim SK, Kasvosve I, Kayondo J, Keavney B, Kekitiinwa A, Khan SH, Kimmel P, King MC, Kleta R, Koffi M, Kopp J, Kretzler M, Kumuthini J, Kyobe S, Kyobutungi C, Lackland DT, Lacourciere KA, Landouré G, Lawlor R, Lehner T, Lesosky M, Levitt N, Littler K, Lombard Z, Loring JF, Lyantagaye S, Macleod A, Madden EB, Mahomva CR, Makani J, Mamven M, Marape M, Mardon G, Marshall P, Martin DP, Masiga D, Mason R, Mate-Kole M, Matovu E, Mayige M, Mayosi BM, Mbanya JC, McCurdy SA, McCarthy MI, McIlleron H, Mc'Ligeyo SO, Merle C, Mocumbi AO, Mondo C, Moran JV, Motala A, Moxey-Mims M, Mpoloka WS, Msefula CL, Mthiyane T, Mulder N, Mulugeta Gh, Mumba D, Musuku J, Nagdee M, Nash O, Ndiaye D, Nguyen AQ, Nicol M, Nkomazana O, Norris S, Nsangi B, Nyarko A, Nyirenda M, Obe E, Obiakor R, Oduro A, Ofori-Acquah SF, Ogah O, Ogendo S, Ohene-Frempong K, Ojo A, Olanrewaju T, Oli J, Osafo C, Ouwe Missi Oukem-Boyer O, Ovbiagele B, Owen A, Owolabi MO, Owolabi L, Owusu-Dabo E, Pare G, Parekh R, Patterton HG, Penno MB, Peterson J, Pieper R, Plange-Rhule J, Pollak M, Puzak J, Ramesar RS, Ramsay M, Rasooly R, Reddy S, Sabeti PC, Sagoe K, Salako T, Samassékou O, Sandhu MS, Sankoh O, Sarfo FS, Sarr M, Shaboodien G, Sidibe I, Simo G, Simuunza M, Smeeth L, Sobngwi E, Soodyall H, Sorgho H, Sow Bah O, Srinivasan S, Stein DJ, Susser ES, Swanepoel C, Tangwa G, Tareila A, Tastan Bishop O, Tayo B, Tiffin N, Tinto H, Tobin E, Tollman SM, Traoré M, Treadwell MJ, Troyer J, Tsimako-Johnstone M, Tukei V, Ulasi I, Ulenga N, van Rooyen B, Wachinou AP, Waddy SP, Wade A, Wayengera M, Whitworth J, Wideroff L, Winkler CA, Winnicki S, Wonkam A, Yewondwos M, sen T, Yozwiak N, Zar H

A Quality Improvement Initiative to Improve Emergency Department Care for Pediatric Patients with Sickle Cell Disease.

Journal of clinical outcomes management : JCOM

Treadwell MJ, Bell M, Leibovich SA, Barreda F, Marsh A, Gildengorin G, Morris CR

Quality Improvement Goals for Sickle Cell Disease Pain Management in an Urban Pediatric Emergency Department: We Can Do Better!.

Blood

Claudia R. Morris, Fernando Barreda, Sara A. Leibovich, Mary Rutherford, Augusta Saulys, Melinee Stewart, Lisa Lavrisha, Elliott Vichinsky, Michael Bell, Marsha J Treadwell

A biopsychosocial-spiritual model of chronic pain in adults with sickle cell disease.

Pain management nursing : official journal of the American Society of Pain Management Nurses

Taylor LEV, Stotts NA, Humphreys J, Treadwell MJ, Miaskowski C

Screening U.S. college athletes for their sickle cell disease carrier status.

American journal of preventive medicine

Jordan LB, Smith-Whitley K, Treadwell MJ, Telfair J, Grant AM, Ohene-Frempong K

Mental Health Symptoms, Quality of Life and Barriers to Accessing Health Care in Sickle Cell Disease.

Blood

Marsha J Treadwell, Fernando Barreda, Kimberly Major, Valentino Walker, Wanda Payton, Kimpreet Kaur, Elliott Vichinsky

Autonomic nervous system reactivity: children with and without sickle cell disease.

Nursing research

Treadwell MJ, Alkon A, Styles L, Boyce WT

Transition from pediatric to adult care in sickle cell disease: establishing evidence-based practice and directions for research.

American journal of hematology

Treadwell M, Telfair J, Gibson RW, Johnson S, Osunkwo I

Chart Card: feasibility of a tool for improving emergency department care in sickle cell disease.

Journal of the National Medical Association

Neumayr L, Pringle S, Giles S, Quirolo KC, Paulukonis S, Vichinsky EP, Treadwell MJ

Education and employment status of children and adults with thalassemia in North America.

Pediatric blood & cancer

Pakbaz Z, Treadwell M, Kim HY, Trachtenberg F, Parmar N, Kwiatkowski JL, Cunningham MJ, Martin M, Sweeters N, Neufeld EJ, Giardina PJ, Olivieri N, Yamashita RC, Vichinsky E

A review of the literature on the multiple dimensions of chronic pain in adults with sickle cell disease.

Journal of pain and symptom management

Taylor LE, Stotts NA, Humphreys J, Treadwell MJ, Miaskowski C

Stress reactivity as a moderator of family stress, physical and mental health, and functional impairment for children with sickle cell disease.

Journal of developmental and behavioral pediatrics : JDBP

Treadwell MJ, Alkon A, Quirolo KC, Boyce WT

Psychosocial and behavioral outcomes in children with sickle cell disease and their healthy siblings.

Journal of behavioral medicine

Gold JI, Mahrer NE, Treadwell M, Weissman L, Vichinsky E

Detection and assessment of stroke in patients with sickle cell disease: neuropsychological functioning and magnetic resonance imaging.

Pediatric hematology and oncology

Gold JI, Johnson CB, Treadwell MJ, Hans N, Vichinsky E

Quantification of analgesic use in children with sickle cell disease.

The Clinical journal of pain

Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L

Sickle Cell Disease Health-Related Quality of Life Questionnaire Project.

Blood

Ellen M. Werner, Marsha Treadwell, Kathryn Hassell, San Keller, Roger Levine

Changes in sleep, food intake, and activity levels during acute painful episodes in children with sickle cell disease.

Journal of pediatric nursing

Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L

Autonomic reactivity and clinical severity in children with sickle cell disease.

Clinical autonomic research : official journal of the Clinical Autonomic Research Society

Pearson SR, Alkon A, Treadwell M, Wolff B, Quirolo K, Boyce WT

Quality of Life (QOL) in Sickle Cell Disease (SCD).

Blood

Zahra Pakbaz, Leah Richards, Marsha Treadwell, Ekua Hackney-Stephens, Keith Quirolo, Elliott Vichinsky

Barriers to adherence of deferoxamine usage in sickle cell disease.

Pediatric blood & cancer

Treadwell MJ, Law AW, Sung J, Hackney-Stephens E, Quirolo K, Murray E, Glendenning GA, Vichinsky E

Trends in complete blood count values during acute painful episodes in children with sickle cell disease.

Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses

Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L

Are there phases to the vaso-occlusive painful episode in sickle cell disease?

Journal of pain and symptom management

Jacob E, Beyer JE, Miaskowski C, Savedra M, Treadwell M, Styles L

A simple model to assess and improve adherence to iron chelation therapy with deferoxamine in patients with thalassemia.

Annals of the New York Academy of Sciences

Pakbaz Z, Fischer R, Treadwell M, Yamashita R, Fung EB, Calvelli L, Quirolo K, Foote D, Harmatz P, Vichinsky EP

Quality of life in patients with thalassemia intermedia compared to thalassemia major.

Annals of the New York Academy of Sciences

Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L, Singer T, Vichinsky EP

Assessing Compliance to Iron Chelation Therapy in Patients with Thalassemia.

Blood

Zahra Pakbaz, Roland Fischer, Richrd Gamino, Keith Quirolo, Robert Yamashita, Marsha Treadwell, Ellen B. Fung, Paul Harmatz, Elliott Vichinsky

Barriers to Deferoxamine Adherence for Adults with Sickle Cell Disease.

Blood

Marsha Treadwell, Jennifer Sung, Eileen Murray, Robert Hagar, Kimberly Major, Ekua Hackney-Stephens, Alastair Glendenning, Christy Hoehner, Elliott P. Vichinsky

Quality of Life in Patients with Thalassemia.

Blood

Zahra Pakbaz, Marsha Treadwell, Robert Yamashita2, Drucilla Foote, Elliott Vichinsky

Pain in children Are there phases to the vaso-occlusive episode in children with sickle cell disease.

Journal of Pain

E. Jacob, C. Miaskowski, M. Savedra, J. Beyer, M. Treadwell, L. Styles

Management of vaso-occlusive pain in children with sickle cell disease.

Journal of pediatric hematology/oncology

Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L

Changes in intensity, location, and quality of vaso-occlusive pain in children with sickle cell disease.

Pain

Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L

Assessment of sickle cell pain in children and young adults using the adolescent pediatric pain tool.

Journal of pain and symptom management

Franck LS, Treadwell M, Jacob E, Vichinsky E

Using quality improvement strategies to enhance pediatric pain assessment.

International journal for quality in health care : journal of the International Society for Quality in Health Care

Treadwell MJ, Franck LS, Vichinsky E

Comparing Children with Sickle Cell Disease and Their Healthy Siblings on Measures of Coping, Self-Efficacy, Social Support, and Behavioral Problems,.

Journal of Developmental and Behavioral Pediatrics

J. I. Gold, M. Treadwell, L. Weissman, E. Vichinsky

Practice guidelines for the assessment of children with sickle cell pain.

Journal of the Society of Pediatric Nurses : JSPN

Beyer JE, Platt AF, Kinney TR, Treadwell M

Approaches to working with adult thalassemia patients in pediatric settings.

Annals of the New York Academy of Sciences

Weissman L, Treadwell M, Foote D, Heer N, Vichinsky EP

#652 Evaluation of home desferal care in transfusion dependent children with thalassemia and sickle cell disease (SCD).

Journal of pediatric hematology/oncology

L. Weissman, M. Treadwell, E. Vichinsky