Implementation

Networking California for Sickle Cell Care Initiative (NCSCC)

The Networking California for Sickle Cell Care Initiative (NCSCC) was developed through advocacy and stakeholder engagement supported by data. Over the next three years, NCSCC will:

  1. Establish a network of sickle cell disease centers and community organizations in counties where the largest numbers of adults with SCD live to provide access to specialty care and improve quality of care for adults with SCD;
  2. Support workforce expansion, among both clinicians and community health workers, to enhance care coordination;
  3. Expand surveillance to monitor disease prevalence, healthcare utilization, complications and costs; and
  4. Conduct outreach and awareness on SCD.

Networking California for Sickle Cell Care Initiative

Pacific Sickle Cell Regional Collaborative (PSCRC)

Funded by U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Sickle Cell Disease Treatment and Demonstration Program and assisted by the National Institute for Children’s Health Quality, the Pacific Sickle Cell Regional Collaborative (PSCRC) aims to:

  1. Improve health outcomes in individuals with SCD;
  2. Reduce morbidity, mortality caused by SCD; and
  3. Improve the quality of coordinated and comprehensive services to individuals with SCD and their families.

Pacific Sickle Cell Regional Collaborative

REAL Answers

REAL Answers is a National Heart, Lung, and Blood Institute study that will help us learn what medicines work best for people with sickle cell disease. Anyone 12 years of age or older can participate. We will collect a small amount of your blood, usually during regularly scheduled labs. You will fill out some brief surveys, either during your regular visit or online. As with other studies, we will look at information in your medical record to learn about your sickle cell complications and pharmacy records to track
your medications.

real answers

Sickle Cell Disease Implementation Consortium (SCDIC)

The Sickle Cell Disease Implementation Consortium (SCDIC) seeks to improve the health and well-being of adolescents and young adults with sickle cell disease (SCD) in the United States through needs-based community assessment of barriers to care, registry of SCD patients with clinical and patient-reported outcomes, and implementation science addressing issues identified from the needs assessment.

Sickle Cell Disease Implementation Consortium

Learn more about our Implementation team.